All about the head rubs…
Aurora has been making positive strides in her breathing! So much progress that this past weekend she got a mask upgrade (or downgrade shall I say). She no longer is on CPAP but on a nasal cannula. We get to see her cute tiny head and face . And she seems so happy and so much more alert now with the change. You can tell it’s so much more comfortable for her now.
We’ve learned she LOVES to have her head rubbed...anytime she’s fussy it seems to help...so all the head rubs for this sweet girl, as she dozes off in our arms.
The time goes fast as we visit her each day! We can’t wait for the day we can take her home… whenever that may be...and continue to try to practice patience as hard as it is.
Her liver seems to be making some small improvements too. We are still praying for her overall health to improve and white blood cells to increase, and for the medicine to keep fighting off the CMV viral infection. And praying for that little head of hers to grow. Though her MRI showed some hard realities that we know we need to be realistic about, we still pray for her brain to make new connections and repair what it can to start growing and to overcome and achieve more than what is expected.
In the near(ish) future they also may attempt to allow her to try and bottle feed-so praying for that too. Continued tube feeding is a likely outcome for her but we still pray and ask for big things. And then respect and move forward with whatever the outcome may be . Trying to continue to focus on what we do have to be grateful for… So much!
I think initially my mindset was let’s pray for “a” miracle. For her to be here and be healed. What I’m learning is this is going to be more than weeks and months of praying for “a” miracle but years of it...praying for lots of little miracles… continuously turning to God in prayer. Day after day with every new phase, praying ongoing for many little miracles, and many hills to climb, for our miracle girl. Who IS here , when for so long we weren’t even sure if that would be likely.
Thankful for friends and family caring for us and praying with us! We look forward to the day she can come home and eventually one day meet so many people that love her and have prayed for her with us!
She’s a gift, reminding us nothing is promised and that we have a future hope better than today…yet today we must live with gratitude for the gifts we do have, not envious of what we don’t....knowing a greater gift and a greater day awaits!
