true value of a human ...
It’s been awhile since I’ve updated on this page... I was prompted as I got a notification asking if I wanted to “renew” our website as we are coming up on a year now.
Wow – a year, hard to believe. It feels like so much life has been lived in this past year and that so much has happened. Often times as you get older it feels the years get faster..but this past year felt extra long..and things that were only one or two years ago in some ways feel like a life time ago..because life has changed so drastically.
We’ve had some ups and downs, but mostly ups the past few months. We are so grateful for Gods continued provision. We moved into a new home in Cartersville, GA. And 3 doors down are now some of our close friends from Atlanta. Built in community as we start in a new place. Closer to family and yet still driveable to work and dr. appointments.
We now have a nurse that comes 4 days a week to care for Rory so I can work (still working mostly from home). Though just when things started to feel manageable,“normal” , sustainable… we got a curve ball..fighting insurance and home health …who knew advocating for a child who is differentabled would be so hard? Require so much time, and so much work….I’m thankful God has put us in this position for Rory, to advocate for her…For Andrews knowledge in the health industry as a medical professional, and for my experience with project management, because it takes a lot of relentless persistence, attention to detail, and forethought to document everything, to get the care we need for Rory…it’s sad that the healthcare system can be so challenging to navigate, especially for children with unique health circumstances that take further explanation than what someone may read in a file on paper….it’s exhausting at times….but also an honor to get to be the one fighting for her, to be the coach in her corner, cheering her on…in a world that was not made to understand her or in some cases even value her.
It seems we must always be ready for a curve ball..because they do seem to come more often these days wth the unique circumstances we are navigating. But at the same time..WOW God. He truly does care for us, and provide for us in ways we would not have thought to go had we been the one behind the wheel.
I also feel God has given me a new lens to look through, in a world where value is so often placed on physical ability and intellectual ability...I now see so much more. That the value of a person should be meausred not by those things, but simply because their heart beats…as a child of God. Therefore they deserve love, they are worth, they are valuable. period.
The days I feel beat down, I remember so early from our story with Rory what Andrew said “we aren’t scared of hard….we are not scared of hard!” And I remind myself to take a deep breathe, to be brave, and to ultimately let go . I believe God wants us to work hard, to be good stewards, to give it our all, but there comes a point where things are beyond our control..and we must take deep breathes, and center ourselves back to peace, to remember we are not in control, we are not God… to share our worries and our fears in the form of prayer, to petition for what we hope and need and then ultimately rest…be still…remember… God is in charge. No matter what we do and don’t do..he is in control… He will fight for us…we must only be still….he provides for the birds and the bees so what makes us fear he will not provide for us? His children. His way of provision doesn’t always look like what we imagine..but he does provide, especially to those who cry out him in prayer for help and rescue.
I’m not sure many people still read this..as my post are irregular , but if someone is still reading this…. 1. Thank you for your love and support of our family. 2. I pray that you too can find time to be still, to take deep breathes, to remember you are not in control….and to lift up your praises, and your worries and concerns to God. He hears you, and he cares for you and he can use even the hardest of circumstances for good. 3. You are valuable, not because of your intellect, your physical capabilities, because of the things you do our don’t do…but because your heart beats and you were created in Gods image.
May we all be kind, may we all have grace, may we seek peace and not strife, may we value different, may we assume the best, may we work hard and be good stewards of what we have been given, but may we also not over pressure ourselves or others and remember to take time to be still…to pray…to listen. May we find comfort in Gods plan and know that we are in his hands, always…even when it may not feels so….he will provide. Have hope, and take heart …for he has overcome.
