The best surprise …

Today we got to hold Rory…each day from now on we’ll get to hold her too!

Praise God, for another answered prayer-the ability to hold and snuggle our little girl.

We thought it’d be weeks before this happened. We were told she still needed her arterial line , (which is a small catheter inserted into an artery….and b/c it runs through an artery holding a little one is too risk until it’s out) Well today when we arrived for our visit, one of our favorite nurses Kim was very excited and almost giddy as she told us the good news….that we’d get to hold Rory!

Rory was an angel and just fed and slept the entire time both mom and dad held her for! I think she felt at home and hopefully felt our presence and our love. Praise God for this blessing! our hearts are full and we are so grateful! Thank you for all of you who have been praying with us, specifically for this!

Continued prayers: time is still tbd but we are told tomorrow (today as I write this..Tuesday 7/21) Rory will have her MRI! The MRI won’t change any of her current treatments but may be a big reading into her future capabilities based on her brain, what they find developmental and with her head, and it’s ability to grow. We specifically are praying the soft spot on her head is there and that her head hasn’t closed but still has opportunity to move and form and grow.

Prayers for Rory’s head , for her brain and for future opportunities to grow and develop.

Lastly continue to pray for the fluid, her poor little belly looks bigger every time we see her from the fluid. And until this fluid goes and stays away she likely won’t be getting off the CPAP (her headgear)

Praise God for his loving kindness and goodness to us!