5 days strong
Rory has been with us for 5 days now!
Having a little one in the NICU during this season we are all living in with COVID has proven to be tough… but we are hopefully starting to get our rhythm.
Even while hospitalized recovering from our c-section we were limited on seeing her. It was hard and lonely in our hospital room, surrounded by baby sounds and cries but not being with our baby.
Moms recovering well overall so by day 3 we came home (reunited with our son) and now get to visit Rory once a day for a 4 hr period that we schedule in advance to not overlap with other NICU parents, being cautious with COVID. We’ve been scheduling the late/evening visits to still be with our son Jedidiah during the day. It’s hard not seeing her all day, but those few hours at night, even though we can’t hold her and she mostly sleeps, is really special. We rub on her, sing to her and read to her!
There also is a night nurse we really like, we’ll get to see many evenings named Kim. Her husband actually worked with Jessica with the CFAPB. What a blessing from God for an instant connection with someone caring for our girl, to create familiarity and trust. God is kind in the details.
Rorys progress: Rory keeps hanging in there, her platelets were higher today which is a praise! Though the fluid seems to slowly be building again…making it harder on her lungs and all her organs.
Prayers for the fluids to stop growing and start to decrease on its own. They will drain her asides again if they need to but the hope is to wait for the asides to handle/disappear on its own. As if they keep draining it, it likely will just keep coming back.
She is eating well (moms milk) overall from her feeding tube. She doesn’t always absorb it all but overall has been eating/absorbing. They haven’t been able to see her bladder /and one of her kidneys past all the fluid in their exam-but she is having bowel movements which we take as a positive sign for healthy functioning.
We still await to schedule the brain MRI and likely will need another chest exam this week. As we anticipate the brain MRI we pray for positive outcomes, that her brain development and function is normal and that her head is in a place where it hasn’t all fused together but her head can keep growing in space and size as she develops.
One BIG praise - the eye doctor examined Rory today-and praise God she can see! He will check her again at 3 months but for now we celebrate the gift of sight and that blindness (at least at this point) likely will not be one of Rorys challenges, praise God! An answered prayer for Rorys vision.
We continue to pray over her entire body system, that everything will work as it’s supposed to, that’ll she’ll continue to heal and fight off this virus. That her platelets will remain high/ good. That her lungs will improve to work on their own so she can get off the CPAP. That she will remain strong, and feel all the love and prayers, to not feel alone through any of this!
Thank you for all the love and encouragement and for continuing to pray for her with us!
“Rejoice in our confident hope. Be patient in trouble, and keep on praying.”
Romans 12:12
