Our little girl is here!

July 15, 2020 Rory Rose was born! Beating so many of the odds.

To be honest, it’s been a hard experience and journey….but we are so grateful for where we are and we continue to hope and pray.

Mom went in for a c-section on July 15th, and as Rory was born at 37 weeks old - there was a team of doctors in the room ready and waiting, anticipating her birth, knowing her situation and risk and ready to give her all the care they thought she may need. Rory was born with a very large belly - full of fluid. The doctors whisked her away to start working on the fluid in her belly to ensure she could breathe.

Rory is currently in the NICU as the team cares for her and are running many tests to help determine all of her health status and needs.

So far she has had her belly drained once, the fluid is coming back, but we are hoping it will continue to subside on it’s own, eventually giving space for her lungs to do their job on their own. She was born weighing 5 lb 6 oz and dropped to 4lb 4 oz once the excess fluid was drained.

She has had platelets given to her 3 times (for low platelets) and hoping they will stabilize .

She is on a CPAP - but at room air, its mostly the pressure she needs because her lungs are having a hard time with all the fluid she has dealt with for so long.

Rory is also on an antiviral drug to try and treat her for the CMV infection. This drug will be given to her for 6 weeks with hopes of improving her overall health outcomes for her brain function and growth, and her ability to hear and see.

We are awaiting many more test and visits from specialist, such as a kidney ultrasound, a brain MRI and hearing and sight test.

It’s been a different and hard experience, especially living in the days of COVID-19. Parent visits are limited to once for 4 hours a day, in order to not have too many parents in the NICU at one time, and must be scheduled ahead of time.

It’s going to be a long road, but we continue to hope and pray for healing over our little Aurora Rose!

We know we serve a big God and we aren’t giving up hope!

-mom & dad -